Where can I get more information about restless legs syndrome (RLS)?

The National Institute of Neurological Disorders and Stroke (NINDS), provides a Restless Legs Syndrome fact sheet, that also includes caregiver information:

Restless Legs Syndrome Fact Sheet

NINDS provides the following resources that you can check out to learn more about Restless Legs Syndrome (also referred to as Willis-Ekbom Disease).

PO Box 5801
Bethesda, Maryland 20824
Telephone: (800) 352-9424  

3006 Bee Caves Road
Austin, Texas 78746
Telephone: (512) 366-9109

55 Kenosia Avenue
Danbury, Connecticut 06810
Telephone: (203) 744-0100
 

1010 North Glebe Road
Arlington, Virginia 22201
TelephoneL (703) 243-1697

National Institutes of Health, DHHS
31 Center Drive
Bethesda, Maryland 20892
Telephone: (301) 592-8573

1002 Lititz Pike
Lititz, Pennsylvania 17543
E-mail: contactASA@sleepassociation.org

 

We hope the above references are useful. Please feel free to get in touch and share with us any new information you come across. We are always interested in research and new findings regarding RLS. We are especially interested in learning more about the latest RLS research regarding the following topics:

  • Iron supplements
  • Magnesium supplements
  • Products that address unpleasant sensations
  • Products that address the urge to move legs or other limbs
  • Kidney failure (also called renal failure)
  • Aids to staying asleep; after falling asleep
  • Peripheral neuropathy
  • Side effects of various solutions or remedies
  • Methods of reducing symptoms of rls
  • Methods of reducing any leg movements
  • Methods of reducing sensation in the legs
  • Methods of reducing any uncomfortable sensations.
  • Results of exercise (including walking and bicycling)
  • Results of soaking or massaging affected limbs
  • Use of pneumatic compression
  • Use of vibratory stimulation devices
  • Use of yoga and other calming meditation techniques
  • Refractory RLS signs and symptoms
  • The genetics of RLS and related disorders

A special note regarding iron supplements: you should also speak to your doctor about how RestLegs could help you and, of course, ask about iron deficiency (also called sideropaenia) and how moderate exercise and iron replacement can help you. It has been reported that iron replacement therapy may help ease RLS symptoms caused by iron deficiency.

 Restless Legs Syndrome (also called Willis Ekbom disease) is certainly a terrible disease.  We are grateful to see organisations like the RLS Foundation, and other organizations listed above, hard at work to address this disease. For people with RLS and related sleep disorders, the efforts that these organizations make is invaluable. 

* We cannot endorse or attest to accuracy of third-party websites.